Family, money and support

Explaining autism to brothers and sisters, and supporting them

Updated 11 minute readApplies to: UK

Sourced and dated · professional review pending

In short

Explain autism to brothers and sisters early, honestly and in simple words, ideally around the time of diagnosis, and add more as they grow. Most siblings have warm relationships with their autistic brother or sister, but most also feel angry, sad or jealous at times. Regular one-to-one time, a family safety plan and support from school or Sibs, the UK charity for siblings, can all help.

Key points

  • Tell siblings about autism around the time of diagnosis. Sibs says not telling them usually makes things worse.
  • Most siblings have warm relationships with their autistic brother or sister, alongside times of anger, sadness or jealousy.
  • Short, regular one-to-one time can help brothers and sisters feel valued, even a few minutes.
  • If a sibling gets hurt, comfort them first, then make a family safety plan.
  • A child doing care tasks that an adult should do may be a young carer, with a right to an assessment in England.
On this page

How does having an autistic brother or sister affect siblings?

It is a mix of good and hard. Most siblings love their autistic brother or sister and get on well, and many also have difficult times that deserve support.

  • Sibs, the UK charity for siblings of disabled people, says "Most siblings have warm and positive relationships with their brothers and sisters who are disabled or have additional needs", and that most also have times of feeling angry, sad or jealous (Sibs).
  • A 2019 review combined 69 groups of siblings of autistic people. Overall, the difference from comparison groups was small. On average, siblings had somewhat more anxiety, low mood and social difficulties, less positive sibling relationships, and more negative beliefs about disability. There were no differences in adjustment, coping, attention, disruptive behaviour or family functioning. The authors recommend including siblings in family support (Shivers et al. 2019).
  • Siblings often go unnoticed. In a Sibs survey of over 200 siblings aged 5 to 16, launched in September 2023, 74% "didn't receive any help from school to support them as a sibling" (Sibs).

A small average difference means many siblings do well, while some need extra help of their own.

When should I tell brothers and sisters about autism?

Tell them early, at around the time of diagnosis, and keep talking as they grow. Sibs advises telling siblings "at the time of diagnosis", and says "At the age of about seven, many siblings start asking questions" (Sibs).

Myth: "They're too young to understand, so it's kinder to say nothing." Sibs says "the effect on siblings is usually worse than telling them", because children fill the gaps with what they hear from other people or the internet (Sibs).

A few things make it easier:

  • Agree the words as a family. Sibs says "Siblings get very confused when different family members say different things about disability" (Sibs). Ask grandparents and other relatives to use the same simple explanation.
  • Include your autistic child where you can. It is their information too. Our guide to telling your child they are autistic covers how to talk with them first.
  • Check what has sunk in. In interviews with 63 siblings, understanding of autism grew with age, but parents "tended to overestimate" how well siblings understood its impact (Glasberg 2000). Ask them to explain it back in their own words.

If you are still waiting for an assessment, you can talk about what their brother or sister finds hard and what helps, and add the word autism later.

What can I say to brothers and sisters at each age?

Use short, concrete words that match what they see at home, then add more as they ask. There is little research on exact wording, so treat these as starting points and swap in your own family's details.

Age What helps Example words
Under 5 Clear, simple explanations with extra comfort. A family scrapbook "Your brother's brain works differently, so he learns in a different way." "Loud noises hurt his ears, so he covers them."
5 to 7 Simple, true answers to questions. Picture books read together "Your sister is autistic. Her brain works in its own way. It's why she loves spinning things and why busy places upset her. You can't catch it."
7 to 11 A fuller picture, including strengths, and a short sentence for friends "Autism is a difference in how your brother's brain works. He was born with it and it won't go away, but he keeps learning. When he flaps his hands, he's excited or calming down."
Teenagers Facts, good websites looked at together, and a real say "What do you already know about autism? What's hard for you at home, and what would help?"

The first example is Sibs' own suggestion for children under 6 (Sibs). The NHS says autism "is something you're born with" and "it's not an illness" (NHS). Flapping and other stimming can be calming or enjoyable, and the NHS advises not trying to change how an autistic child behaves unless it is harmful (NHS).

Sibs also suggests story books about disabled children and their siblings, a question box on top of the fridge, looking up good websites together with older siblings, and helping each child find "a short and easy sentence" for other children (Sibs). For example: "My sister is autistic. Busy places are hard for her."

If your autistic child uses signs, pictures or a talking device (AAC), teach brothers and sisters some of them. A 2025 study of key word signing in primary schools noted that signing only works as communication when the people around a child understand and use it too (O'Leary et al. 2025).

How do I keep things fair when my autistic child needs so much attention?

Fair does not have to mean the same. It means each child gets what they need, and every child gets some of you.

  • Protect one-to-one time. Sibs says "even short moments can help them feel valued and secure" (Sibs). Ten minutes at bedtime, or a regular trip for just the two of you, counts.
  • Let them have their feelings. Jealousy and anger are common and allowed. Try "It's really annoying when he knocks your tower down" before explaining why it happened.
  • Keep some rules the same for everyone, such as no hurting, and give siblings a safe place for precious things.
  • Limit their caring role. Sibs suggests limiting the care and responsibility young siblings take on, and what they overhear about their brother or sister's needs, because "They will be listening" (Sibs).

If a younger child starts copying meltdowns or other behaviour, Sibs says this is usually how young children learn, or a bid for attention. Show the behaviour you want instead. Its example: "Your brother bangs his head because words are hard for him; when you are upset you can use your words to tell me" (Sibs). If either child bangs their head or hurts themselves, see our guide to hitting, biting and head-banging for when to get medical help.

Having an autistic brother or sister is one of the factors NICE lists as linked with a higher chance of autism. If you have other worries about a younger child's development, talk to your health visitor or GP, and see our guide to signs of autism in young children.

What if my autistic child hits or hurts a brother or sister?

Keep everyone safe, comfort the hurt child first, and make a plan together. The sibling's feelings matter as much as understanding why it happened. Sibs advises these steps (Sibs):

  1. Go to the hurt child straight away, comfort them and give any first aid needed.
  2. Tell them you are sorry they are hurt, and that it must have been painful or frightening.
  3. Once your autistic child is calm, tell them simply that hurting is not OK.
  4. Make an emergency plan for times when things get out of control, so you and your other children know how to stay safe.

A plan might include a safe room your other children can go to, a code word that means "go there now", and who they can fetch or call. Then look for what set it off. Hitting can be a sign of distress, caused by things such as noise, pain, a change of plan or not being able to say something. NICE guideline CG170 says professionals should look for causes like these first when a child shows behaviour that challenges. Our guide to hitting, biting and head-banging explains how to find triggers and reduce risk.

Sibs also lists signs that a sibling may be struggling, including being teased or bullied, having problems at school, seeming very sad, angry or jealous, or not wanting to talk to you (Sibs).

Get help now: If anyone is seriously hurt, call 999. For urgent medical advice about an injury, call NHS 111. If your autistic child often hurts a brother or sister, or a sibling is frightened at home, see your GP. Sibs says a GP can check a sibling's physical and mental health and refer on, for example to CAMHS, the NHS mental health service for children and young people. In Northern Ireland, where there is no NHS 111, call your GP or the GP out of hours service.

Could my child be a young carer?

Possibly, if they regularly help to look after their brother or sister. The NHS says a young carer is under 18 and helps look after a relative with a disability or illness, which can include a brother or sister (NHS). Sibs puts it this way: a sibling doing care tasks "that really should be done by an adult" is a young carer (Sibs).

Helping out now and then is part of family life. Regular caring that cuts into sleep, homework or friendships is a sign to ask for support.

In England, the law gives young carers a right to an assessment:

  • The council must assess a young carer's needs if it appears they may need support, or if the young carer or a parent asks (Children and Families Act 2014, section 96).
  • The NHS says "If you or your parents request it, your local council must organise a young carer's assessment", and it must look at education, training, leisure and their views about the future (NHS).
  • NICE says families of autistic children, including siblings, should be offered information and an assessment of their own needs.

To ask, contact your council's children's services, or talk to your GP or your child's headteacher. Local young carers services offer support, and Carers Trust has a UK network of them (see our help page).

How can brothers and sisters play together?

Keep it short, fun and optional, built around games your autistic child already enjoys. A sibling is a playmate, not a helper or a therapist.

Evidence check: Research on siblings as play partners is small and early. A review found "no consistent method for including siblings in treatment" (Shivers and Plavnick 2015). The promising studies were tiny: three sibling pairs in one (Spector and Charlop 2018) and three families in another (Bagawan et al. 2026). That is too little evidence to say how well it works.

  1. Choose a people game that fits what your autistic child likes, such as chasing, swinging or songs. People games are "simple, interactive games played without toys" (Hanen).
  2. Give the sibling one simple job: offer a turn, wait, or copy what their brother or sister does.
  3. Make turns clear with words ("my turn, your turn") or a picture.
  4. Stop while it is still fun, and thank the sibling without making them responsible.

Playing side by side counts. Some children "prefer to play on their own or alongside other kids", and watching from nearby can be "a great first step" (Hanen). Our guide to playing with your autistic child has more ideas.

Where can brothers and sisters get support?

Siblings can get support from Sibs, young carers services, school, the GP and Childline. A 2026 review of 12 studies found sibling support groups "feasible and acceptable", with reported benefits including better understanding and friendships with other siblings (Kaur et al. 2026).

Who How they help
Sibs Information for young siblings and parents, "Ask a sibling advisor", parent workshops and a primary school programme, Sibs Talk (Sibs)
Young carers services Local support for siblings who help with care (Carers Trust)
School or nursery Understanding home life. Tell them, and ask what support they offer
GP Checks a sibling's physical and mental health, and refers on if needed (Sibs)
Childline Free support for children and young people under 19, on 0800 1111 (Childline)

For older siblings and adults, Sibs has collected stories from 20 adult siblings of autistic people (Autism: The Sibling Perspective). Looking after yourself matters too: see our guide to stress, respite and short breaks.

Scotland, Wales and Northern Ireland: The young carer's assessment described above is the law in England. The rules are different elsewhere, so ask your council, social services or your child's school about support for young carers where you live. Sibs is a UK charity, and Contact's helpline covers families anywhere in the UK (Contact).

Questions parents ask

How do I explain autism to my 4 year old?

Keep it short and link it to what they can see. Sibs suggests clear, simple explanations for children under 6, such as 'Your brother's brain works differently, so he learns in a different way', along with extra comfort and reassurance. Add one practical line, like 'Loud noises hurt his ears, so he covers them.' Picture books and a family scrapbook help. Expect to repeat it many times and answer new questions as they come.

When should I tell my other children about autism?

Sibs, the UK charity for siblings of disabled people, advises telling brothers and sisters at the time of diagnosis. It says the effect of not telling them is usually worse than telling them, and that many siblings start asking questions at about seven. If you are still waiting for an assessment, you can talk about what their brother or sister finds hard and what helps, and add the word autism later.

My daughter says it's not fair that her brother gets away with things. What do I say?

Start by agreeing that it feels unfair, and let her say how she feels. Then explain that fair does not always mean the same: each child gets what they need. Keep a few rules the same for everyone, such as no hurting, and protect her things and space. Regular one-to-one time with her, even ten minutes, shows that her needs matter too.

My younger child has started copying their brother's meltdowns. Should I worry?

Usually not. Sibs says young siblings often copy as a way of learning or to get attention. Show the behaviour you want instead, give them words for their feelings, and notice and praise the times they use them. If you have other worries about your younger child's development, talk to your health visitor or GP, because having an autistic brother or sister is linked with a higher chance of being autistic.

What should I do when my autistic child hits their younger sibling?

Comfort the child who was hurt first and give any first aid needed. Tell them you are sorry they were hurt. Once everyone is calm, tell your autistic child simply that hurting is not OK, and look for what triggered it, such as noise, pain or a change. Make a family safety plan. If it happens often, see your GP. If anyone is seriously hurt, call 999, and for urgent medical advice about an injury, call NHS 111 (in Northern Ireland, your GP out of hours service).

Is my older child a young carer?

They may be. The NHS says a young carer is under 18 and helps look after a relative with a disability or illness, which can include a brother or sister. Sibs says a sibling doing care tasks that really should be done by an adult is a young carer. In England, if you or your child ask, the council must organise a young carer's assessment. Local young carers services can offer support.

Should I tell my other child's school about their autistic brother or sister?

Yes. Sibs advises telling nursery, childminders and school that your child has a disabled brother or sister and how it affects family life. In a Sibs survey of over 200 siblings aged 5 to 16, 74% had not received any help from school as a sibling. Ask what support the school offers, and whether it runs a sibling programme.

How does having an autistic brother or sister affect a child?

It is a mix. Sibs says most siblings have warm and positive relationships with their disabled brothers and sisters, and most also have times of feeling angry, sad or jealous. A 2019 review of 69 groups of siblings found somewhat more anxiety, low mood and social difficulties on average than in comparison groups, but no differences in coping, attention, disruptive behaviour or family functioning. Many siblings do well, and some need extra support.

How this guide was made

Written by
The Rocks Make Pebbles editorial team, using the 26 sources listed below.
How
We researched the topic from UK guidance and published research, drafted the guide with the help of AI tools, and checked it against its sources on 28 September 2026. Read our editorial policy.
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Sources

Every fact in this guide links to one of these. We checked each link when we last updated the guide.

  1. GP out of hours service nidirect, 26 November 2024
  2. Young siblings' feelings and experiences Sibs, 28 July 2025
  3. Functioning among typically developing siblings of individuals with autism spectrum disorder: a meta-analysis (Shivers et al.) Clinical Child and Family Psychology Review, 2019
  4. If Only You Knew: survey of siblings aged 5 to 16 Sibs
  5. Explaining disability to your sibling child Sibs, 14 July 2026
  6. The development of siblings' understanding of autism spectrum disorders (Glasberg) Journal of Autism and Developmental Disorders, 2000
  7. Siblings under 6 Sibs, 20 November 2025
  8. What is autism? NHS, 6 May 2026
  9. Supporting an autistic child NHS, 6 May 2026
  10. Staff perceptions and experiences of using key word signing with children with Down syndrome and their peers in the first year of mainstream primary education (O'Leary, Lyons and Frizelle) International Journal of Language and Communication Disorders, 2025
  11. Autism spectrum disorder in under 19s: recognition, referral and diagnosis (CG128) NICE
  12. When to be concerned about your sibling child Sibs, 29 July 2025
  13. Autism spectrum disorder in under 19s: support and management (CG170) NICE, June 2021
  14. Being a young carer: your rights NHS, 27 March 2024
  15. Children and Families Act 2014, section 96: young carers' needs assessments legislation.gov.uk
  16. Carers Trust Carers Trust
  17. Sibling involvement in interventions for individuals with autism spectrum disorders: a systematic review (Shivers and Plavnick) Journal of Autism and Developmental Disorders, 2015
  18. A sibling-mediated intervention for children with autism spectrum disorder: using the natural language paradigm (Spector and Charlop) Journal of Autism and Developmental Disorders, 2018
  19. Parent-coached sibling-mediated intervention for social communication in autistic children: a pilot single-case study (Bagawan et al.) Behavioral Sciences, 2026
  20. Choosing people games The Hanen Centre, March 2025
  21. What stands in the way of successful peer play The Hanen Centre, August 2023
  22. Sibs home page Sibs
  23. Autism: The Sibling Perspective Sibs
  24. Psychosocial support for siblings of individuals with autism: insights from a scoping review (Kaur et al.) Indian Journal of Psychological Medicine, 2026
  25. Childline NSPCC
  26. Contact us Contact
Telling your child they are autistic, at every ageWhy telling children early, simply and positively tends to go better, with example words for each age and answers to 'Will it go away?'Playing with your autistic child: following their leadWhy lining up, spinning and repeating are real play, how to join in on your child's terms, simple people games with a pause, and what the research found.Hitting, biting and head-banging: keeping everyone safeHitting, biting and head-banging are signs of distress, not naughtiness. How to keep everyone safe, check for pain, find the cause and get help.Looking after yourself: stress, burnout, respite and short breaksExhaustion is common and is not a failure. What helps, your right in England to a parent carer needs assessment and short breaks, and who to call.Meltdown, tantrum or shutdown? How to tell and what to doA meltdown is overwhelm, not naughtiness. How to tell it from a tantrum or a shutdown, and what helps before, during and after.

Words in this guide